Birthed this year, our objective is to reach out and unearth the dangers of Endometriosis. We target women, girls and their families. We operate by raising awareness, generating conversations surrounding endometriosis, creating Endo ambassadors and supporting victims.
Mission: We pursue to raise awareness, educate, advocate and improve care for women with endometriosis, train more young girls to become change agents and provide support and treatment for women with endometriosis.
The mystery of this strange disease as often affected my studies immensely. I had always wanted to go to a boarding school but I could never have that privilege since most of the days in the month I was in so much pain (unexplained). My parents had to send me to a school that will be close to home.
In 2000, I went on a holiday to visit my family. I had to be go into A & E (Accident and Emergency) since I was in excruciating pain. Upon arrival, the nurses asked a few questions and then as usual since it was ‘menstrual pain’, I was put on the lowest level of emergency and asked to wait. I was rolling all over with pain; at this point my brother in-law was furious. He approached them and asked that they attend to me as soon as possible. He also asked them to investigate for ENDOMETRIOSIS; since his ex-girlfriend had similar symptoms.
I was taken in and had a minor surgery (laparoscopy – camera through the belly button) to confirm if it was endometriosis. The feedback showed that I had stage 4 of endometriosis. Finally at the age of 25, there was a name for the condition that was misdiagnosed for 11 years. I panicked and wondered what disease that was, and by that stage, major surgery was the only option. The growth was so massive on my organs and I was told surgery couldn’t be done immediately. I had to take zoladex injections (chemically induced menopause).
Nobody should ever have to go through this, especially at that age. Suddenly had I to deal with menopausal symptoms; hot flashes, mood swings etc. My story is extreme and points to the need for early diagnosis. I had sought for help in different health institutions to no avail. The condition is not easy to diagnose, because its effects are so diverse and the intensity of the pain does not necessarily relate to the severity of the condition. Each case needs to be handled individually, and the patient may have to make some difficult choices. Your strengths and resources, as well as your pains are yours alone. The first surgery was done after a year of the zoladex injections. I lost the use of my left leg completely a few days after the surgery. I was booked for physiotherapy for nine months. A device (Electrical Muscle Stimulation) was given to me to give me (shocks) all in aid of enabling moment in my left leg.